Reflections on the
Care of a Patient with Palliative Care Needs
Mr. Gireesh G. R.
Associate Professor, Yenapoya
University, Mangalore
*Corresponding Author Email: gireeshsachin@gmail.com
CASE SUMMARY
28 year old female with diagnosis of
carcinoma of left breast with metastatic relapce. She is a young
female, house wife by profession and was diagnosed as a case of carcinoma of
left breast in the year 2011 where she was treated at a local hospital and she
underwent mastectomy followed by concurrent radiation therapy and chemotherapy.
Although patient was responding well to the chemotherapy and radiation therapy
in the initial stages, few months later the tumour
has started to recur. Scan showed relapse with metastasis to bone, liver, lung
and brain.
She was
bought to hospital by the relative with chief complaints of
1.
Back pain- is primarily because
of secondary metastasis. The patient relatives explained her back pain is
severe in intensity since 2-3 days with partial pain relief and taking tablet
morphine 10 mg for every fourth hour.
2.
Progressively
worsening headache may indicate secondary metastasis to the brain.
3.
Abdominal pain can also be a
symptom of secondary metastasis to the liver.
4.
Appetite loss, nausea
and vomiting- since 2-3 days due to the side effects of chemotherapy and radiation
therapy and it may also indicate secondary metastasis to the liver.
5.
Occasional chest pain.
·
Past history Nothing
significant.
·
Family history My client has a
daughter who is 1 yr old. She belongs to middle class family and there was no
family history suggestive of genetic inheritance of carcinoma of breast.
Physical Examination
·
Thin built, poorly nourished, dehydrated
·
Pulse 80 beats/ min, regular, low volume.
·
B.P 130/90 mm of Hg.
·
Fasting blood sugar 116 mg/dl.
·
Cyanosis, clubbing of fingers, lymphadenopathy,
pitting edema were absent.
·
Chest equal lung
expansion, no symptoms of dyspnea, notenderness, normal vesicular
breath sounds.
·
Abdomen soft, epigastric tenderness, slight hepatomegaly
and spleenomegaly. Normal bowel sounds.
·
Other systemic examination is normal.
Investigation
done Reason why the investigation was done
|
Complete blood picture to assess general
condition, infection Serum electrolytes since client was
dehydrated tired and agitated. Fasting blood sugar to identify the
blood glucose level. Liver function test to identify the extend of metastasis and to decide regarding choice of
medication. Blood urea and serum creatinine to check
dehydration level and renal function. |
4.
Treatment and other Management plans
·
Pain to relieve the pain,
patient was advised to take Inj. Morphine 2mg subcutaneous (sos), and Tab. Tramadol
(BD). I advised and taught the client about various non pharmacological
interventions such as diversional therapy,
comfortable positioning, positive reassurance, psychological support.etc.
·
Hydration since the client
was thin built, poorly nourished and poor skin turgor, it is very important to restore the hydration
status of the client. Hence the physician advised for IV fluids such as Ringers
lactate and normal saline along with Inj. Multivitamin.
·
Monitoring every 2 hrs vital
signs monitoring and estimation of intake and output chart.
·
Nausea and vomiting the physician
advised to take antiemetic such as Tab. Domestal
(TID) and Inj. emeset 8mg IV (BD). Inj. Pantoprazole 40 mg IV (SOS).
·
Sepsis physician advised
corticosteroids Inj. Dexona 4mg in 100 ml of NS IV
and Inj. Clindamycin 600mg IV 8th hrly.
·
Constipation advised the
patient to take fiber rich foods, fruits and vegetables. To treat constipation
the patient is on Tab. Dulcolax (2 Tabs).
·
Exercise taught patient
about various active and passive exercise for better joint mobility and to
prevent lymphedema.
5.
Outcome expected / anticipated
?
The patient
was symptomatically better, good pain control was achieved with morphine and
other non pharmacological managements. Her hydration status improved as
evidenced by improvement in skin turgor, better oral
intake, patient is able to pass stools at least once a
day. Her nausea and vomiting is reduced to a greater extend. There was an
improvement in overall condition of the client. On request of family members
patient got discharged on 7th day with proper instructions.
6.
Other consultants
involved in care
Physiotherapist,
radiation oncologist, psychologist, neurologist and urologist, dietician,
radiation physicist were consulted on various aspects of client care.
Cumulative efforts of these people help to provide better holistic care to the
patient, and also to clear the doubts of the family and the patient.
7.
Works carried out by
other consultants
The ENT
surgeon evaluated thoroughly and excluded any further intervention. Radiation
oncologist, radiation physicist suggested radiotherapy to reduce the secondary
metastasis. Physiotherapist taught patient about various active and passive
exercise to overcome any complications that develop due to immobility.
Dietician prescribed diet plan for the client to overcome her constipation. psychologist helped client and family members to overcome
stress and coping related to client condition.
Palliative Care
Principles and Practice.
The most
challenging part while providing care for this client was to console the family
members and make them to realise that one of their loved
ones had carcinoma. Since my client was very young and she had a daughter it
was very difficult for both the client and family members to accept the
reality. Being a health team member, it was difficult for me to cope with such
a situation.
Majority
of my care was concentrating on disease management and neglecting other
important aspects of care which are truly essential and vital. After undergoing
training in palliative care, I understood the importance of not only disease
management, equal importance should be given on symptomatic treatment and
psycho social care which are vital to cope with such a situation. I also felt
need for interdisciplinary team approach is vital to take care of client with
carcinoma.
After
attending the course in palliative care, it has helped me to understand the
importance of early identification of illness, importance of assessment,
symptomatic management and supportive care to the patient and family to cope
with the disease and treatment.
Today in
the new light of palliative care, my horizons of palliative care have widened
to see client as a holistic individual not merely caring distressing physical
symptoms. It helped me to understand the importance of psychosocial aspects
which are very crucial in the management of client and understood various
common ethical issues which are often neglected in day to day delivery of care.
a.
Physical care:
Good pain
care was achieved through analgesics and non pharmacological management, nausea
and constipation was resolved with antiemetics and
laxatives and various other interventions. Client diet improved, hydration
status was restored. Client was given mouth care, hygienic care on a regular
basis. Intake and output was monitored. Back care was given and change in
position was initiated. Wound dressing was done to combat infection.
b.
Psychosocial issues:
In my
client the most important psycho social issue was body image disturbance. She
was worried about future of her daughter and how the relatives and society will
receive her. I educated client and family members about various rehabilitative
measures that are available to be utilised to tackle
the body image disturbance. I also arranged meeting with other individuals who
had undergone same surgery and adapted various rehabilitative measures to
overcome hopelessness.
c.
Spiritual issues:
The
family has expressed spiritual distress to some extend during hospitalisation. The client expressed their spiritual
distress by asking question to the god regarding the disease which she is
suffering which has brought so many changes in her physical appearance. The
family members also spiritually distressed and were asking questions regarding
is it a disease which comes because of sins, what I have done...so on. I
arranged counselling sessions for them to overcome
the spiritual distress in a greater extend.
d.
Communication issues
of the patient and the family:
The family
members were quite educated. They were always well informed and were aware
about the various problems and treatment options that were readily available.
As a care provider i had no major communication
issues when dealing with adult members of the family except this small child.
e.
Ethical issues:
The patient
was constantly refusing to undergo further treatment after the secondary metastasis
to the other organs of the body. It was very difficult to convince the client
about the importance of symptomatic treatment and essentials of dealing psycho
social issues of the client. Family members were of the opinion that
alternative system of medicine will be better option to treat disease like
this. The family members tried alternative medicines for betterment but the
therapy added more distressing physical symptoms rather than relive to the
patient (autonomy versus beneficence).
CONCLUSION:
We need
to improve at recognizing the psychosocial and spiritual needs of the family
and active involvement of the family members while delivering care to the
client. We also recognized the importance of early palliative care team work
will help the cancer patient will help to elevate physical and other symptoms
quite efficiently. We need to recognize the need for good living environment,
comfort while dying and support the grieving with compassion and dignity. All
the small efforts in this direction are like the every drop of water saved for
future.
ACKNOWLEDGEMENT:
I am an
associate professor working in college of nursing since 7 years. As a teacher
my role is to supervise the students in the clinical area and guide the
students for the holistic care of a client by taking into consideration of
individual clients needs. As a vital member of health care team, it is
important to take care of clients needs by giving adequate emphasis on various
aspects of care which ranges from physical to physiological, psychological,
spiritual aspects. The client whom I have selected for my case study is a young
female with just 28 yrs old who made me to think on focussing
the need for good nursing care, psychological support, better communication
skills and various ethical issues involved in client care.
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Received on 14.07.2015 Modified on 01.08.2015
Accepted on 14.08.2015 © A&V Publication all right reserved
Asian
J. Nur. Edu. and Research 5(3): July-
Sept.2015; Page 443-446
DOI: 10.5958/2349-2996.2015.00089.0